There is a HUGE amount of confusion around for families trying to work out what evidence they need to provide of their child’s autism diagnosis.
Private assessments are expensive – families are forking out about $3,000 for assessments and reports per child. Consider the impact of that when a family has multiple children requiring assessment.
Families are “triaging” their child who is most in need of support as who can afford the cost of one, let alone two or three assessments? Or face a 3.5 year wait via the Child Development Services for an autism assessment with little to no support in the interim.
One of the challenges families face is that they are dealing with up to four different government departments as they seek to secure help for their child. Two Federal, two State-based.
So we have ended up with different requirements for Medicare, NDIS and the Western Australian Department of Education.
I have tried to collate the information all in one place so that you can make the best decision on how to support your child.
Medicare
In March 2023 a Medicare rebate was introduced for people aged 0-25 years seeking diagnosis of complex neurodevelopmental disorders and disabilities, including autism.
To receive the rebate you need a GP to refer you to a paediatrician or psychiatrist.
The paediatrician or psychiatrist then refers you onto allied health practitioners for assessment.
Which is great in theory, but just means more people are trying to get in to see a paediatrician and psychiatrist for an initial referral. And we all know that’s near on impossible.
Given that both NDIS and Department of Education now do not require a paediatrician or psychiatrist to sign off on an autism diagnosis, many families are going without the Medicare rebate so that they can speed up the process.
National Disability Insurance Scheme (NDIS)
The NDIS access team has confirmed that a Level 2 or Level 3 autism diagnosis by a clinical psychologist, neuropsychologist or educational and developmental psychologist experienced in autism assessments is sufficient evidence of a “List A” condition.
List A conditions are conditions that are likely to meet the disability requirements for access to the NDIS.
The NDIS only requires consensus of the diagnosis by a paediatrician or psychiatrist IF the report by the psychologist states that an opinion or conferral of the diagnosis is required. Then, the NDIS will expect that report at some point in the future to confim diagnosis.
This is a different requirement from access to the Individual Disability Allocation through the Department of Education.
Under the age of 6 years
For children under the age of 6 years, a formal diagnosis is not required. Families concerned that their child has delays in two or more areas should contact Wanslea.
Medication Prescription
Autism frequently co-occurs with ADHD. Psychologists can diagnose ADHD, however they cannot prescribe medications. If you wish to explore pharmacological treatments such as stimulant medications, these can only be initiated by a paediatrician, psychiatrist or neurologist.
Updated 7 June 2024.
Western Australian Department of Education
The information provided below was provided by the Department of Education in their submission to the Parliamentary Inquiry into autism in schools (2023) and is supplemented by updated advice from the Disability and Inclusion team.
I have included a few clarifications in [square brackets] to make the information clearer.
Schools may apply for an Individual Disability Allocation for students with a disability.
Eligibility for this funding is based on 8 disability categories (ASD, deaf and hard of hearing, global developmental delay, intellectual disability, physical disability, severe medical health condition, severe mental disorder and vision impairment).
Explicit criteria are applied and evidence of eligibility against each criterion is required from relevant medical practitioners or professionals.
Eligibility requirements for supplementary funding
Eligibility for an IDA in the ASD category is in accordance with:
• Diagnostic and Statistical Manual of Mental Disorders – 5th edition (DSM-5, American Psychiatric Association, 2014
• National Guideline for the Assessment and Diagnosis of Autism Spectrum Disorder in Australia.
Eligibility documentation requirements
To be eligible, students need a signed letter, or a statement that is embedded within the text of a full report from eligible practitioner/s.
The letter or statement needs to:
• state the diagnosis
• state the current levels of severity (support, substantial support, or very substantial support)
• specify whether the diagnosis is:
− with or without intellectual impairment
− with or without accompanying language impairment
• list the names of the diagnosing practitioners
• state that all practitioners confer and agree with the diagnosis if the assessment was completed by a consensus team.
If the assessment is undertaken by a single practitioner, a statement from a second practitioner is also required to confirm that:
• the practitioners have conferred following the completion of all assessments
• each practitioner agrees with the diagnosis and levels of severity.
Eligible practitioners
Students can be assessed for ASD using a single practitioner pathway or a consensus team pathway.
The choice of practitioner and the number of practitioners involved in the assessment of functioning is determined by the assessment team.
This is applied to students of all ages.
Consensus Team Pathway
If a consensus team pathway is taken, the ASD assessment is conducted by either a:
• medical practitioner with specialist registration in community child health, general paediatrics, psychiatry or neurology, or who has a general registration with at least six years of relevant experience in assessing neurodevelopmental disorders
[OR]
• a psychologist with practice endorsement in clinical psychology, educational or developmental psychology, or neuropsychology.
[AND]
At least one additional diagnostician is selected to join the diagnostic team.
The decision is based on their skills and expertise and can be:
• a psychologist with general registration
• a speech pathologist
• an occupational therapist who has experience assessing ASD.
Single Clinician Pathway
If a single practitioner pathway is taken, the ASD assessment is conducted by either a:
• medical practitioner with specialist registration in community child health, general paediatrics, psychiatry or neurology, or who has a general registration with at least six years of relevant experience in assessing neurodevelopmental disorders
[OR]
• psychologist with practice endorsement in clinical psychology, educational or developmental psychology, or neuropsychology.
[AND]
The diagnosis must be verified by an eligible second practitioner with skills and expertise in the assessment and diagnosis of autism.
Interim IDA while the student is on a waitlist for assessment
Students are eligible for an interim IDA if they can provide a letter from the assessing practitioners or government agency confirming they:
• have been accepted for an ASD assessment
• are on the waitlist for assessment
• have an ASD assessment scheduled.
A request for consent or a referral is not considered evidence.
An interim IDA is not available if the student has previously not met the ASD criteria and is re-referred for assessment.
Extension of Interim IDA
On 16 April 2024, The Department of Education confirmed the endorsement of an extension to the initial allocation of interim funding for students undertaking an autism assessment from:
- six months to 12 months for private assessments
- 12 months to 18 months for public assessments.
Who applies for the IDA?
School staff submit the application on the family’s behalf.
The application is assessed by the Department to make sure it meets the specific eligibility criteria.
Schools are then allocated a funding level that corresponds to the level of support and the teaching and learning adjustments required by the student.
Principals and school staff determine the specific distribution of these resources to meet the needs of individual students, including implementing teaching and learning adjustments and creating responsive staffing profiles and learning support teams that best meet the needs of their students and school context.
Adjustments may include access to appropriate technology or specialised equipment, modifying the curriculum, alternative methods of assessment, access to an education assistant or accessibility enhancements to the school buildings or grounds.
What if I am unhappy with the outcome or support provided by the school?
Contact the school as early as possible if you have concerns. Talking to your child’s teacher, year coordinator, school administration or principal is the best place to start.
Raise the matter with the principal if:
- you were not able to achieve a satisfactory outcome with the teacher or staff member
- the matter is about the conduct of a teacher or staff member
- the matter is about another aspect of school life that is impacting your child’s education.
Contact the school to request an appointment to discuss your concerns.
Raise the matter with the education regional office if:
- you believe that your concern was not satisfactorily resolved or addressed by the school
- the matter is about the conduct of the principal.
If the matter is not about the conduct of the principal or a previous unsatisfactory resolution, the education regional office may refer it back to the school, unless there is a reason preventing the school from managing it.
You can read more about the complaints process here.
Pia
Perth Kids Hub was created and is run by me, Pia Hazelwood.
I'm a Perth Mum of two gorgeous curly haired kiddos, wifey and a communications and marketing professional.
Since our first kiddo was diagnosed with a congenital heart defect 10 years ago, our family has been on a mystery-shopping tour of (seemingly) every kind of paediatric specialist and therapist in Perth.
Along the way we have met the most amazingly talented and dedicated people who are passionate about helping our little (and big) people to flourish. Whatever that looks like and means to them.
Perth Kids Hub has given me a creative outlet and a way of helping families to find their own amazing team, who can help their child or children understand how their brains and bodies work.
